Tag Archives: hair loss

Dec. 03.

Heeeey, Blepharitis

My Status: Are you kidding me???
Mood: Cheerful 😀

I couldn’t help but title the post this way… and if you don’t hear the Macarena playing in the background, then I don’t know what’s wrong. So let’s recap—knee is miraculously better, scudding along at 0 on the pain scale (may it stay there forever), back and arms are improving and will probably be pretty much back to normal tomorrow. So what else could go wrong?

I’m really going to have to stop asking that question.

Blepharitis—that’s what else could go wrong. When I awoke this morning, my left eye was bloodshot, rims were red, and it felt like I had little rocks in the corner near the tear-duct. My eyelids were both puffy as well, which they have been because my allergies have been elevated, but this felt different than allergies for the eyes. *sigh* A phone call to my regular doc later and I had a lunch time appointment for him to look at my infected eye.

Any other time, I’d have been tempted to use my allergy eye drops, warm compresses and wait a few days to see whether it cleared. But both my regular doc and my oncologist have made it perfectly clear, even to a stubborn-headed mule like me, that ANY infection was to be treated immediately. That I cannot afford to have any infection take hold in my system. Especially now since I had to have steroids for the knee issue, which further weakens my immune system. So the call to the doc was made.

Bleh!

Here’s what the informational sheet my doc provided has to say about it:

Blepharitis is a common and persistent inflammation of the eyelids. … Bacteria reside on the surface of everyone’s skin, but in certain individuals they thrive in the skin at the base of the eyelashes. The resulting irritation causes dandruff-like scales and particles to form along the lashes and eyelid margins.

So now I will need to use antibiotic eye drops 4 times daily, warm compresses to help descale my eyes, and wash them ever so gently with a solution of baby shampoo (Baby Magic is the best—no petroleum products in it). Or, potentially, I could lose my eyelashes. I know I’ve talked a bit about hair loss and how it’s not likely to happen from chemo, but now I have something that could potentially rob my eyes of their lashes? Good grief. I wonder whether I could have permanent eyelashes grafted on that are hot pink????

HolidayHairWhat do you do when life keeps raining on your physical well-being? *shrugs* I bought a purple holiday hat with bling on the brim and took a goofy picture of myself and posted it to Facebook. Why??? Because I can and it helps me to focus on things OTHER than my ridiculous health. Don’t get me wrong, I am taking the health thing seriously, and unless I tell them otherwise, I do follow doctor’s orders, but I also have to laugh because we have reached the point of if it’s not one thing, it’s another. By posting my pic on Facebook, I got to take a couple trips down memory lane with the folks who have known me for donkey’s years. I was able to reminisce about writing an epic ‘Twas the Night Before Christmas revision with my friend Nancy when we both worked at K-Mart. And I think there is a unanimous opinion that my curls peeping out from the cap bear a striking resemblance to Herbie, the Dentist elf in the Christmas Classic, Rudolph, the Red-Nosed Reindeer. So for the season, I shall be LK, the writer elf.

Oh and if you haven’t twigged it yet, I do love the holiday season, and will probably be decorating the posts with Christmassy stuff through the month.

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Nov. 17.

A Bit of the Hair …

My Status: Feeling Good
Mood: Feeling accomplished – laundry done, beds made—who could ask for more?

For those of you coming along with me on this journey who do not have an understanding of how weird and twisted a writer’s brain can be, this post may sound weird and twisted. I will preface it by stating that for me as a writer, my characters have to live in my head in order to come out on the page as full-fledged people, so my characters talk to me, we have conversations, we argue, and I have, at times, received the full-on silent treatment. What affects me affects my characters, and what affects them affects me.

I haven’t written a lot since finding out I had to have chemo. First because I had to get things taken care of in a short time frame, and second because I’m not getting a lot of cooperation from my gang. I am currently in the process of trying to finish up the 4th book in the Misfit McCabe series, One Way Ticket Home, so I can move on to my next project. This particular book has taken some unexpected twists and turns and I have to tell you, I love what has happened with it. I can’t wait to give everyone a chance to experience it. I knew the girls were all being a bit stand-offish, and we hadn’t had a chance to fully discuss what would be happening with me and what we could all expect—it’s kind of hard to have that conversation when you really don’t know yourself.

I thought maybe working through a scene with the boys was the way to ease into it, but I needed them to fight … and they wouldn’t. They didn’t want to “gross me out” while I was connected to the tubes. Ultimately, I think I will be able to write during the six hour day, if for no other reason than to escape the fact that I am connected to a drip for six hours. But this round it was not to be so.

The boys at least showed up. The girls refused to even come talk to me until after my first treatment. Then Janie came through. Janie is a character from One Way Ticket Home, and I love this character so much, I can’t wait for you to meet her. Here’s how the conversation went.

Me: Hey, Janie.
Janie: *stops dead, eyes widen, hands cover mouth*
Me: What’s wrong?
Janie: You still have hair!

And that’s how I found out Katie had told all the girls I was going to lose my hair. And they were all weirded out by it. I had to tell each one of them that with my particular treatment, hair loss is not common, so it is unlikely that I will lose my hair, but even if I did, it wouldn’t be a big deal for me. I know that hair loss is a big deal for some people (men and women) during the chemotherapy process, and whatever is a big issue for you, is a big issue. I’m the first to say so. I don’t think being upset by hair loss means you’re vain. It is the mourning of loss and the process you have to go through in search of health. Hair loss for me, simply isn’t one of my issues. If it starts coming out, I’ll shave my head, just to be done with it. And then I’m going to have a blast shopping for some outrageous wigs (and if I can swing it, matching eyebrows), and some killer scarves.

KewpieWildIn fact, one of the questions I started debating in the middle of the night (Denny had to start work at 0300, so we had some awake time during the wee hours) was whether I should get my hair trimmed, or cut short. It needs to be cut or I’ll soon be the wild-haired kewpie doll visiting all your nightmares. The hair has reached the bushy, totally out of control stage and has been there for a few weeks driving me crazy. But I didn’t want to have it done until I knew whether I was getting a cut or a cut and having a bit of color put back in. The color will have to wait, so now the big question is trimmed to the shoulders or a really short style. Warning: If you choose really short, you may have to listen to me whine during the growing back out stage.

I understand why the girls were upset by thinking I would lose my hair—for teenage girls (or near teen as in the case of Angela) and in fact, for most people, hair makes a statement about you as a person. They fear being targeted as different outside of their control. I like my hair, I always have, but maybe I feel a bit differently about it because people have wanted to touch it and play with it my entire life. And it annoys me when it gets in my way, so when working I usually have it up and out of the way. I once cut it all off because I realized it was taking me over half an hour on a daily basis just to tame it.

Or maybe hair loss as something not so big sunk in when I took a modeling course at the age of thirteen, and my instructor had recently grown back her hair, and freely discussed not letting the loss of a few strands of hair slow her down. She was gorgeous, and if she wasn’t bothered by it, then why should I worry? And I really do plan to buy wigs, should I lose my hair—hot pink, bright purple, and rainbow … because I can. Because it will be fun. Because it will give me a chance to talk about it. And because if I do lose the hair, it will grow back … and if it doesn’t? *shrugs* I still say not a big deal. I can live a long time without hair.

So the girls are doing a bit better knowing the hair loss thing is not likely, and even though they are not as comfortable with it as I am, they will be okay if it does happen. But they still haven’t been quite ready to work. No one seems to want to upset me at the moment. *rolls eyes* I’m trying to get across to them, life doesn’t stop for this. Life continues on.

My social media circles are a testament to the circle of life. Right now in my stream I have a grandmother happily posting pictures of her brand-new grand-baby, a friend is preparing for youngest son’s wedding in 5 days, another friend is on her way home because her mother passed away this morning. My stream shares triumphs and despair, sickness and health. This cancer thing is only a part of my life, it is not going to be allowed to consume my life until we get rid of it. There is too much life going on, and if I stopped everything, I’d miss it.

Now all I have to do is convince my characters.

The picture at the top of the post is perfect for talking about my characters—a castle growing out of a cliff and reaching toward the clouds. So very much a part of being a writer. And all this discussion of hair makes me think Hair, so have posted the song below:

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