Now that I’m a hair less exhausted and might be able to construct a legible sentence or two, I thought I’d share how my infusion day went. Because of the length of time the treatment takes, I have to be to the doctor’s office by 8:30 AM which means leaving the house around 7:30 … just in case I run into traffic. I had prepared better for the day, since I knew it would be closer to 8 hours than 5-6, I brought some things to nibble on as well as things to drink. The chemo nurse who had been there the last time wasn’t there, but the nurse who usually takes care of me was running the chemo room, so all was good. She got me all hooked up and tested the port, but then nothing was going in. It took a bit of finessing, but she got it going and then came the first question of the day.
As I am allergic to Benadryl, they give me a steroid instead to help minimize the allergic reactions … and I do need it. The problem was that the preceding treatment, the chemo nurse charted that she had given me 10mg and I know my doctor had given instructions for 4mg. I recalled the conversation verbatim, and the doctor agreed that is what she had said, but we didn’t know whether the chart had been incorrectly marked or whether I had been given the 10mg vs. the ordered 4mg. (The chemo nurse is no longer with my oncologist, and it’s probably a good thing if she cannot follow what the doctor orders.) So we decided to proceed with the 4mg. That settled, I pulled out my laptop, settled back in the chair, and started working on some things.
I always bring stuff to work on while I’m there because I don’t sleep easily or well in that type of environment and can’t sit there and stare at the walls doing nothing. So I have my laptop and can work on whatever I have the brain power for (which this time around wasn’t much). I also can hop on the internet and do some surfing or watch a movie, as I usually bring one along. The morning went by quickly and then it happened. I made the BIG mistake of invoking Murphy’s law by making the following statement: “Wow, it’s going fast today.” I said it after the second bottle had completed, so should have been half way done and I had hopes of being done early. Murhpy just gave a huge evil belly laugh and said, “Not so fast.”
With the third bottle hooked in, I figured it would be a good time to watch the movie I had brought with me because I really was too tired to do much else. So I popped in Spy and began watching. I had seen Spy before and thought it would be a nice, light-hearted watch. I enjoy Melissa McCarthy and though the film itself is on the spoof/ridiculous side figured it might not be quite as funny the second time round, but still something to take me away. Boy, was I wrong. I had forgotten to factor in my state of exhaustion, so it was like watching the movie after a few too many drinks. It was hysterical. I nearly snort-sprayed my monitor on lines I KNEW were coming up. And it was difficult to keep from laughing out loud (I didn’t want to wake anyone who was napping by cackling away.) I could not have made a more perfect selection for the day. Anyway, if you’re utterly exhausted and want to watch something for giggles, I’d certainly recommend it.
Somewhere toward the end of the movie, I noticed that my drip wasn’t doing it’s thing and dripping. It was still working, but going extremely slow. I didn’t think we’d ever get that bottle done with. So, instead of being on the fast track, I was going to be done later than usual. By the time all was said and done, it was after 6PM before I left the doctor’s office. Then I had to swing by the pharmacy to drop off a prescription for some sleep assistance. I haven’t been sleeping well at all of late. An hour at a stretch, with a lot of wakeful time in between, so it was time to get some help.
I arrived home more than 12 hours after I had left, just in time to take my chemo. And by the time I did get home, I noticed something. My left wrist felt almost completely numb, as if it had been broken, and both ankles were going numb. Definitely an allergic reaction. And then it clicked … earlier I had been extremely antsy and couldn’t stay seated in the chair, which does happen with me from time to time, so I didn’t think anything about it, but realized, it was a precursor to the swelling happening by the time I arrived home.
Knowing what was happening, I was able to get things under control quickly, but I think it answered the question of what dosage of the steroid the chemo nurse had given me the last time. So, my next visit, the doc and I will have a chat about how to best handle the amount.
The picture of Mount St. Helens is a reminder for me that even after devastation, the tenacity of life can conquer.
I am getting to this post a little late because things happened fairly quickly and I have been on the tired side of late — kind of like the kitten passed out in the picture. After my latest cold, which took a few weeks to get rid of, I went back on my chemo treatment and when I went to the oncologist, while my leukemia values had improved, my immune system values had not, so she decided to move forward with a treatment to boost my immune system. Remember how happy I was to be skipping the chemo chair this time around? Well, I will now be going for a monthly infusion to help my immune system rally so I am not so prone to getting ill. Eight hours and four bottles worth once a month.
This may be a short post (but knowing me, it won’t be 😀 ) A few days ago, I talked about getting my hair chopped off because it has become quite bushy and out of control, and for those who have not yet met me in person, I have a ton of hair. I have been waiting to get it cut because I needed to know whether I was going to add pink to it … and since I won’t be, I decided it could all get cut off and then I’ll grow it out again. This picture doesn’t quite do it justice as far as showing the out-of-controlness that has taken over my head. For once it was behaving, but it does show some of the waves I have in my hair, as well as the fact that I take terrible pictures of myself. Oh, you can also see my puffy eyes—my eyes are small, but they are not that small. Allergies have been trying to take up residence and I am battling them back as best I can. They are NOT welcome here.
The picture at the top of this piece speaks to me about the leaves of change. The fall has always been an exciting time of change. And this fall has been no different. The old things fall away to make room for those things new. For me, the cutting of my hair is symbolic of the changes going on. I needed at the very least a trim, but the idea to go short took hold for several reasons. The root of which is that I do like to do different things with my hair, and since it’s not the best idea to color it for awhile, I wanted to do something, and going short gives me a different versatility than when shoulder length or to my waist. And here’s the best thing of all … it’ll grow back if I want it to. My hair is a change I can control (or at least have the illusion of control) when right now so many things in my body are not within my control. AND it was a blast getting it cut. If I can’t have fun with this, then what is the point?
